Americans Want Control Over Personal Health Information

Patient Privacy Rights, a non-profit organization claiming to be the nation’s health privacy watchdog, recently released the results of a survey that shows that a vast majority of Americans “want to be able to decide which individual people can see and use their health information.” To give individuals the level of control that they desire,
Patient Privacy Rights proposes the creation of a “one-stop shop” website where patients can decide who views their electronic health information, similar in concept to the national “do not call” lists introduced in the US and Canada to reduce unwanted telemarketing calls.

I wonder if Canadians have similar feelings about their personal health information? Any thoughts?

Mike

3 responses to “Americans Want Control Over Personal Health Information

  1. The Australian government has proposed a “Personally Controlled Electronic Health Record” to try and head off this criticism. Just what this means in practice is unclear at this stage. The implications for data collected by the public health system for use by the public health system and not by patients are also yet to be determined.

  2. Pingback: Tweets that mention Americans Want Control Over Personal Health Information | eHealth Musings -- Topsy.com

  3. I think you ask a very important question.
    As one who works in the area of medical records management and the facilitation of record transfers not only to healthcare professionals, but to the patients themselves, I can tell you that patients certainly want access. Today’s patients are involved, informed, and are making choices concerning their healthcare like never before. Given the nature of the information held within a medical record, and issues of security abound, one of those choices will have to be that of access.
    http://medicalrecordscanada.blogspot.com/2010/11/healthcare-in-canada-ranks-lowest.html

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